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4P- / Wolf-Hirschhorn Syndrome Awareness Day


WHEREAS, the health and well-being of all Virginians are of utmost importance to the prosperity and livelihood of our Commonwealth’s families and communities; and

WHEREAS, 4p- syndrome, also known as Wolf-Hirschhorn Syndrome, is a chromosomal disorder caused by a partial deletion of the short arm of chromosome 4; and

WHEREAS, children with 4p- syndrome are usually have low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications while still maintaining pleasant and lovable personalities; and

WHEREAS, dedicated professionals in the medical field are undertaking valuable research on this extremely rare disease and the exploration of new therapies and diagnostic tools to offer hope to persons with 4p- syndrome; and

WHEREAS, the National Institute of Health estimates that 1 in 50,000 births result in 4p- syndrome; however, this may be an underestimate because some affected individuals may go undiagnosed; and

WHEREAS, it is incumbent upon the citizens of Virginia to work together to advocate for increased research, effective diagnostic screenings, improved therapies for early intervention, and other necessary and critical treatments for 4p- syndrome; and

WHEREAS, it is also important to recognize and applaud the valuable role which families and advocates of those who have 4p- syndrome play in helping our medical community advance the knowledge and awareness of this syndrome; and

WHEREAS, the Commonwealth of Virginia joins citizens in promoting the awareness of Wolf-Hirschhorn/4p- syndrome, and recognizing the families, individuals, and caregivers who are impacted by this disorder;

NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize April 16, 2019, as 4P-/WOLF-HIRSCHHORN SYNDROME AWARENESS DAY in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.