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National Osteogenesis Imperfecta Awareness Week


WHEREAS, Osteogenesis Imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily, often from mild trauma or no apparent cause; and

WHEREAS, OI is caused by genetic defects that affect the body’s ability to make strong bones; and

WHEREAS, there are at least eight recognized forms of OI, with a range of severity from mild to life-threatening; and

WHEREAS, because there is no cure for OI, treatment focuses on minimizing fractures, the surgical correction of deformity, reducing bone fragility, maximizing mobility and independent function; and

WHEREAS, although the exact number of people affected with OI in the United States is unknown, the National Institute of Health Osteoporosis and Related Bone Diseases estimate that about 20,000 to 50,000 people in the United States have OI; and

WHEREAS, increased funding for education and research are needed to help find more effective treatments; and

WHEREAS, National Osteogenesis Imperfecta Awareness Week recognizes the medical professionals, family members, and volunteers who are committed to treatment and awareness of Osteogenesis Imperfecta;

NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize May 5-12, 2018, as NATIONAL OSTEOGENESIS IMPERFECTA AWARENESS WEEK in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.