WHEREAS, Osteogenesis Imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily, often from mild trauma or no apparent cause; and
WHEREAS, OI is caused by genetic defects that affect the body’s ability to make strong bones; and
WHEREAS, there are at least eight recognized forms of OI, with a range of severity from mild to life-threatening; and
WHEREAS, because there is no cure for OI, treatment focuses on minimizing fractures, the surgical correction of deformity, reducing bone fragility, maximizing mobility and independent function; and
WHEREAS, increased funding for education and research are needed to help find more effective treatments; and
WHEREAS, the Osteogenesis Imperfecta Foundation is declaring May 4-11, 2019, to be National Osteogenesis Imperfecta Awareness Week, and board members, staff, medical professionals, and volunteers are joining together to focus attention on OI in an effort to increase awareness;
NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize May 4-11, 2019, as NATIONAL OSTEOGENESIS IMPERFECTA AWARENESS WEEK in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.