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Neurofibromatosis Awareness Month


WHEREAS, neurofibromatosis is a genetic disorder that can cause tumors to grow on nerves throughout the body; and

WHEREAS, neurofibromatosis occurs in an estimated 100,000 Americans regardless of gender, race, or ethnic group; and

WHEREAS, neurofibromatosis can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain; and

Whereas, the Children’s Tumor Foundation leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and ultimately a cure for NF; and

Whereas, the Children’s Tumor Foundation is actively fostering collaborative partnerships in both science and industry to speed the drug research and development process through a number of consortia called Synodos; and

Whereas, the Children’s Tumor Foundation works to improve access to quality patient healthcare through its national NF Clinic Network and provides patient and family support through its information resources, youth programs, and local chapter activities; and

WHEREAS, it is important to ensure that persons living with neurofibromatosis have access to lifelong care, and that research for treatment of neurofibromatosis continues;

NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize May 2018 as NEUROFIBROMATOSIS AWARENESS MONTH in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.