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Smith-Kingsmore Syndrome Awareness Day


WHEREAS, Smith-Kingsmore Syndrome is a rare genetic disease affecting children at birth and is often misdiagnosed or undiagnosed, delaying adequate and specific treatment necessary to support positive physical and intellectual development; and

WHEREAS, we recognize the many Virginia medical professionals across multiple specialties that support children within our Commonwealth living with Smith-Kingsmore Syndrome through direct care and engagement with new research; and

WHEREAS, Smith-Kingsmore Syndrome families of Virginia are supported by a foundation of volunteer staff dedicated to creating a sunny world of hope for children with Smith-Kingsmore Syndrome by improving their quality of life through medical advancements and community support; and

WHEREAS, the observance of Smith-Kingsmore Syndrome Awareness Day provides a unique opportunity for the citizens of Virginia to join together to share the blessings and struggles of Smith-Kingsmore Syndrome, and to promote community by creating awareness through interactive activities; and

WHEREAS, the goals of Smith-Kingsmore Syndrome Awareness Day are to educate the public and promote accurate and timely diagnosis of this rare genetic disorder;

NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize August 15, 2021, as SMITH-KINGSMORE SYNDROME AWARENESS DAY in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens