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Wolf-Hirschhorn/4P- Syndrome Awareness Day


WHEREAS, the health and well-being of all Virginians are of utmost importance to the prosperity and livelihood of our Commonwealth’s families and communities; and

WHEREAS, Wolf-Hirschhorn Syndrome, also known as 4p-, is a chromosomal disorder caused by a partial deletion of the short arm of chromosome 4; and

WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications while still maintaining pleasant and lovable personalities; and

WHEREAS, dedicated professionals in the medical field are presently involved in valuable research on this extremely rare disease, its misdiagnosis, and the exploration of new therapies and diagnostic tools to offer hope to persons with 4p- syndrome and their families; and

WHEREAS, the National Institute of Health estimates that 1 in 50,000 births result in 4p- syndrome; however, this may be an underestimate because some affected individuals may go undiagnosed; and

WHEREAS, it is important that Virginians work together to advocate for increased research, effective diagnostic screenings, early intervention, and other necessary and critical treatments for 4p- syndrome, as well as recognize the valuable role that families and advocates play in helping advance the knowledge and awareness of this syndrome; and

WHEREAS, the Commonwealth of Virginia joins citizens in promoting the awareness of Wolf-Hirschhorn/4p- Syndrome, and recognizing the families, individuals, and caregivers who are impacted by this disorder;

NOW, THEREFORE, I, Ralph S. Northam, do hereby recognize April 16, 2018, as WOLF-HIRSCHHORN 4P- SYNDROME AWARENESS DAY in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.