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By virtue of the authority vested by the Constitution of Virginia in the Governor of the Commonwealth of Virginia, there is hereby officially recognized:

CDG Awareness Day

WHEREAS, congenital disorders of glycosylation (CDGs) are a group of rare metabolic disorders that affect normal organ development and the neurological system, leaving children, adolescents, and adults impaired with significant physical and developmental disability; and

WHEREAS, CDGs are severely under-diagnosed and misdiagnosed with only approximately 1,800 cases diagnosed with CDG globally, and only approximately 350 cases currently reported in the United States; and

WHEREAS, lack of public awareness and visibility of CDGs contribute to under-diagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, early diagnosis of CDGs is important to ensure timely management of clinical complications, genetic counseling, and when available, treatment and therapeutic remedies; and

WHEREAS, the goal is to raise awareness and increase the accurate and timely diagnosis of this rare group of inherited metabolic disorders, known as CDG;

NOW, THEREFORE, I, Glenn Youngkin, do hereby recognize May 16, 2023, as CDG AWARENESS DAY in the COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of our citizens.