Strengthen the Spirit of Virginia
Strengthen the Spirit of Virginia
By virtue of the authority vested by the Constitution of Virginia in the Governor of the Commonwealth of Virginia, there is hereby officially recognized:
CDG Awareness Day
WHEREAS, congenital disorders of glycosylation (CDGs) are a group of rare metabolic disorders that affect normal organ development and the neurological system, leaving children, adolescents, and adults impaired with significant physical and developmental disability; and
WHEREAS, CDGs are severely under-diagnosed and misdiagnosed with only approximately 1,800 cases diagnosed with CDG globally, and only approximately 350 cases currently reported in the United States; and
WHEREAS, lack of public awareness and visibility of CDGs contribute to under-diagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and
WHEREAS, early diagnosis of CDGs is important to ensure timely management of clinical complications, genetic counseling, and when available, treatment and therapeutic remedies; and
WHEREAS, the goal is to raise awareness and increase the accurate and timely diagnosis of this rare group of inherited metabolic disorders, known as CDG;
NOW, THEREFORE, I, Glenn Youngkin, do hereby recognize May 16, 2023, as CDG AWARENESS DAY in the COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of our citizens.