WHEREAS, Malan syndrome is a rare genetic disorder caused by a change in the Nuclear Factor One X (NFIX) gene that is located on the short arm (called “p”) of chromosome 19 at position 13.2; and

WHEREAS, Malan Syndrome is characterized by overgrowth, intellectual disability, vision and/or hearing impairment, skeletal anomalies, epilepsy, and anxiety; and

WHEREAS, Malan syndrome was first identified in 2010 and linked to a change in the NFIX gene; and

WHEREAS, Malan syndrome affects approximately 350 individuals worldwide; and

WHEREAS, currently there are 8 known families affected by Malan Syndrome in Virginia; and

WHEREAS, the mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan Syndrome in the global community through support, outreach, and research; and

WHEREAS, the Commonwealth of Virginia recognizes the importance of raising awareness and fostering support for individuals and families impacted by Malan syndrome;

NOW, THEREFORE, I, Glenn Youngkin, do hereby recognize August 19, 2025, as MALAN SYNDROME AWARENESS DAY in the COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all of our citizens.