WHEREAS, Cockayne Syndrome is an extremely rare genetic disorder caused by defects in DNA repair, resulting in severe developmental, neurological, sensory, and physical impairments; and

WHEREAS, children diagnosed with Cockayne Syndrome commonly experience growth failure, hearing and vision loss, developmental delays, photosensitivity, progressive neurological decline, and premature aging, requiring families to navigate complex medical needs, frequent monitoring, and lifelong management to ensure safety and quality of life; and

WHEREAS, Cockayne Syndrome is estimated to affect only 2 to 3 newborns per million in the United States and Europe, making it one of the rarest pediatric genetic disorders and contributing to significant challenges in diagnosis, treatment, and public awareness; and

WHEREAS, greater awareness and education regarding Cockayne Syndrome is essential to improving early diagnosis, expanding research, and strengthening support for individuals, families, and caregivers who face the physical, emotional, and financial impacts of this condition; and

WHEREAS, advocacy organizations, healthcare professionals, and researchers continue to advance understanding of Cockayne Syndrome, promote improved treatments, and work toward better outcomes for those living with this rare disorder;

NOW, THEREFORE, I, Abigail D. Spanberger, Governor, do hereby recognize August 2026 as COCKAYNE SYNDROME AWARENESS MONTH in the COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.